Today we have published a new report  ‘Sickle cell digital discovery report  – Designing better acute painful sickle cell care’.

This study set out to fully understand the broad availability of digital products and services that currently exists and, crucially, explore what technology is in place for A&E clinicians, red-cell specialists, and ambulance care, to aid fast support to sufferers on their emergency hospital arrival.  The research has found a lack of individual care plans in place, and more broadly no clear definition of what constitutes an actual care plan.  Whilst digital care plans already exist in some parts of the NHS, a number of sickle cell patients did not have one, and where they did, most were paper based, not often followed, and easily dismissed.

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