About the UK Forum

for Haemoglobin Disorders

Vision statement:

The UKFHD aims to ensure equal access of optimal care for all individuals living with an inherited haemoglobin disorder.


The UKFHD is headed by a group of multidisciplinary trustees, patient and organisational representatives with a passion and drive to:

          • Advocate and influence policy.
          • Promote and review best practice.
          • Share ideas and promote and advise on research.
          • Educate health professionals and support education of patients.
          • Influence and advocate an equitable prevention programme for sickle cell and thalassaemia disorders.

The UKFHD is registered, Company Number 09481209.  Further information on Trustees and Accounts can be accessed via the following link:  Further information