
About the UK Forum
for Haemoglobin Disorders
Vision statement:
The UKFHD aims to ensure equal access of optimal care for all individuals living with an inherited haemoglobin disorder.
Mission:
The UKFHD is headed by a group of multidisciplinary trustees, patient and organisational representatives with a passion and drive to:
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- Advocate and influence policy.
- Promote and review best practice.
- Share ideas and promote and advise on research.
- Educate health professionals and support education of patients.
- Influence and advocate an equitable prevention programme for sickle cell and thalassaemia disorders.
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The UKFHD is registered, Company Number 09481209. Further information on Trustees and Accounts can be accessed via the following link: Further information