Quality Standards & Peer Reviews
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UK Forum Academic Meetings
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Educational Resources & Presentations - Videos
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Patient & Carer Educational Resources
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Awards, Accolades & Achievements
More detailsBlack Lives Matter
The National Haemoglobinopathy Panel, Haemoglobinopathy Coordinating Centres along with our partners the UK Forum on Haemoglobinopathies, Sickle Cell Society, UK Thalassaemia Society, we stand in solidarity with Black Lives Matter. We recognise that our commitment must also reflect itself in our actions, attitudes and how we advocate for our patient population and staff.
Networking
Whether you are a patient, student, scientist, nurse, psychologist, or doctor networking is one of the most essential processes that help bring the community together. It is not just about connecting with as many people possible but more about meeting the ones who can endorse your skillsets, show you opportunities, educate, support you and direct you to other, well-connected people.
Why not become a member and begin building your own community? Now is the time.
Health Equity
Across the nation, gaps in health are large, persistent and increasing—many of them caused by barriers set up at all levels of our society. After all, it’s hard to be healthy without access to good jobs and schools and, safe, affordable homes. Health equity means increasing opportunities for everyone to live the healthiest life possible, no matter who we are, where we live, or how much money we make.
Inclusivity
Social inclusion by definition is about making all groups of people feel included and valued within their society or community.
Where individuals or groups of individuals are excluded, or feel on the margins of society there is often a direct impact on their health. Certain illness or disability itself can also cause people to be excluded.
Diversity
Physicians, scientists and other medical experts dedicate a portion of their clinical time to this site, we are in the unique position to give you access to the knowledge and experience of Medical Physicians, scientists and other medical experts dedicate a portion of their clinical time to this site.
Members feedback on meeting presentations
Nice to know there is an ongoing work to improve the platform and good engagement from MDSAS
It was good to know how well the NHR are doing
It is wonderful to learn about the developments of this important facility
Excellent speaker who made a rather dry subject very interesting
Excellent and fantastic session, exceptionally powerful.
Constant reminders about the underlying severity of transfusion-dependent thalassaemia are probably required to offset complacency and resulting tragedy.
All talks were superb, but I think this was the best today.
Fantastic session and exceptionally powerful.
A difficult topic to listen to as we are all too aware of the difficulties we face every day in our speciality, but gave a great deal of hope that we can bring around change together.
Excellent presentation, lots of lessons to be learnt and actions to be implemented.
Really glad that race-related inequalities are still at the forefront of our discussions
Very good and feel a session on this should be a regular session at each meeting to update the group
Really useful and informative presentations
We collaborate with the following organisations.
Dr Subarna Chakravorty is a Paediatric Haematologist with a special interest in non-malignant haematology and stem cell transplant for haemoglobinopathy and non-malignant diseases. She joined King’s College Hospital as consultant in July 2015. Prior to that, Subarna led the Paediatric Haemoglobinopathy service at Imperial College Healthcare NHS Trust and the Imperial Paediatric Red Cell Disorders Network for 5 years, where she was also involved in the bone marrow transplant programme for paediatric haemoglobinopathy. Since 2021, Subarna has been involved in the adult sickle cell bone marrow transplant service at King’s College Hospital.
I have accumulated over 40 years of experience in the fields of transfusion science and clinical transfusion. Qualifying in 1984 as a registered Biomedical Scientist while working for NHS Blood and Transplant, I later took on the management of the Transfusion Laboratory at Oldchurch Hospital before finally moving to North Middlesex University Hospital NHS Trust in the early 1990s. It is here that I became interested in the transfusion needs of patients with inherited red cell disorders. Thanks to the support and encouragement of Dr Anne Yardumian, the Red Cell Consultant Lead, I had the opportunity to become more deeply involved in an expanded patient-facing role, supporting the wider clinical needs of transfusion-dependent patients beyond ensuring the delivery of the right blood to the right patient.
Dr Rachel Kesse-Adu is a consultant haematologist who qualified in medicine from Imperial College School of Medicine in 2002 and completed her specialist training in haematology at Kings College Hospital in London in 2012. 
Dr Jo Howard is a Consultant Haematologist at Guy’s and St Thomas’ NHS Foundation Trust, London, UK, and Honorary Professor in Haemoglobinopathies at King’s College London. She is lead for the adult haemoglobinopathy service with responsibility for more than 700 patients, the majority of whom have sickle cell disease. She is network lead for the South Thames Sickle Cell and Thalassaemia
Dr Paul Telfer is clinical lead for Haemoglobinopathy services at Bart’s Health NHS Trust and the East London and Essex Clinical
John James OBE has 33 years of experience within the NHS including 4 CEO roles. He was Chair of the West London Cancer network (2002-2005) and Chair of the North West London Diabetes Network (2003-2004). 
Dr Farrukh Shah, Consultant haematologist, expert in management of thalassaemia syndromes, transfusion and non-transfusion dependent and has a specialist interest in management of iron overload. Dr Farrukh runs joint clinics with the diabetes team and has a good grasp of endocrine complications affecting patients with iron overload. She looks after patients with sickle cell disease and other rare inherited anaemias as part of his routine practice.
Baba Inusa graduated MBBS 1984, ABU Zaria, Nigeria. He is a Professor of Paediatric Haematology, King’s College London and Lead Consultant Paediatric Haemoglobinopathies, Evelina London Children’s Hospital, Guy’s and St Thomas NHS Foundation Trust. He is also a mentor, supervising PhD and Masters students at King’s College London, receiving students from Italy, China and the Middle East.
Living with a rare genetic condition herself, Roanna Maharaj is a seasoned patient advocate who believes the patient’s voice needs to be included throughout the continuum of care from preventative medicine to potentially curative therapies. She is passionate about addressing the health inequities facing her community and believes in supporting health care professionals to provide consistent and quality care throughout the United Kingdom.