Dear Red Cell Colleagues,
I am delighted to let you know that the next round of Haemoglobinopathy Peer review for Children and Adults is going to be starting next year.
We are looking for members of the Steering Group – a number of you have expressed an interest already which is great news and I have those details saved. We are keen for all aspects of the care of red cell disorders to be covered so really want representation from all areas medical, psychology, nursing, managerial and AHPs. Please email me with a short statement of why you are interested, where you work and your job title to e.drasar@nhs.net and karen.madgwick@nhs.net.
We are also looking for volunteers to be the leads for adult thalassaemia/rare anaemia, adult Sickle Cell and paediatric sickle cell. Mark Velangi is kindly staying on as lead for paediatric thalassaemia.
If people can’t commit to either of the above, please do consider whether you would be interested in doing visits – these can be very interesting and is great to be able to “borrow” ideas from colleagues and also to help them get what they want out of their service.
As I presented at the November UKFHD educational meeting the process is not to judge. All, including myself are aware that services are going above and beyond and then to be limited by capacity, finance and staffing. It is hoped that the peer review process will continue with work of engagement from trusts, commissioners and integrated care systems to make a difference to patient care. While it is appreciated that this is an additional time commitment it is hoped that you will help with the visits, lead or steering group. If you are interested or would like further information please email e.drasar@nhs.net and karen.madgwick@nhs.net.
The deadline for expresses of interest is 30th January 2023 with a view to holding the first steering group committee meeting in late February 2023, date to be confirmed.
Kind regards
Dr Emma Drasar
Dr Subarna Chakravorty is a Paediatric Haematologist with a special interest in non-malignant haematology and stem cell transplant for haemoglobinopathy and non-malignant diseases. She joined King’s College Hospital as consultant in July 2015. Prior to that, Subarna led the Paediatric Haemoglobinopathy service at Imperial College Healthcare NHS Trust and the Imperial Paediatric Red Cell Disorders Network for 5 years, where she was also involved in the bone marrow transplant programme for paediatric haemoglobinopathy. Since 2021, Subarna has been involved in the adult sickle cell bone marrow transplant service at King’s College Hospital.
I have accumulated over 40 years of experience in the fields of transfusion science and clinical transfusion. Qualifying in 1984 as a registered Biomedical Scientist while working for NHS Blood and Transplant, I later took on the management of the Transfusion Laboratory at Oldchurch Hospital before finally moving to North Middlesex University Hospital NHS Trust in the early 1990s. It is here that I became interested in the transfusion needs of patients with inherited red cell disorders. Thanks to the support and encouragement of Dr Anne Yardumian, the Red Cell Consultant Lead, I had the opportunity to become more deeply involved in an expanded patient-facing role, supporting the wider clinical needs of transfusion-dependent patients beyond ensuring the delivery of the right blood to the right patient.
Dr Rachel Kesse-Adu is a consultant haematologist who qualified in medicine from Imperial College School of Medicine in 2002 and completed her specialist training in haematology at Kings College Hospital in London in 2012. 
Dr Jo Howard is a Consultant Haematologist at Guy’s and St Thomas’ NHS Foundation Trust, London, UK, and Honorary Professor in Haemoglobinopathies at King’s College London. She is lead for the adult haemoglobinopathy service with responsibility for more than 700 patients, the majority of whom have sickle cell disease. She is network lead for the South Thames Sickle Cell and Thalassaemia
Dr Paul Telfer is clinical lead for Haemoglobinopathy services at Bart’s Health NHS Trust and the East London and Essex Clinical
John James OBE has 33 years of experience within the NHS including 4 CEO roles. He was Chair of the West London Cancer network (2002-2005) and Chair of the North West London Diabetes Network (2003-2004). 
Dr Farrukh Shah, Consultant haematologist, expert in management of thalassaemia syndromes, transfusion and non-transfusion dependent and has a specialist interest in management of iron overload. Dr Farrukh runs joint clinics with the diabetes team and has a good grasp of endocrine complications affecting patients with iron overload. She looks after patients with sickle cell disease and other rare inherited anaemias as part of his routine practice.
Baba Inusa graduated MBBS 1984, ABU Zaria, Nigeria. He is a Professor of Paediatric Haematology, King’s College London and Lead Consultant Paediatric Haemoglobinopathies, Evelina London Children’s Hospital, Guy’s and St Thomas NHS Foundation Trust. He is also a mentor, supervising PhD and Masters students at King’s College London, receiving students from Italy, China and the Middle East.
Living with a rare genetic condition herself, Roanna Maharaj is a seasoned patient advocate who believes the patient’s voice needs to be included throughout the continuum of care from preventative medicine to potentially curative therapies. She is passionate about addressing the health inequities facing her community and believes in supporting health care professionals to provide consistent and quality care throughout the United Kingdom.