Previous Meeting Presentations
Meetings: 59th
- Overview of NHS SCD & thalassaemia antenatal & newborn screening programme (lab & diagnosis & data review) - Yvonne Daniel
- UKTS update &reactions to Casgevy news - Gabriel Theophanous
- Lessons from the Infected Blood Inquiry epidemiology and infection - Katy Davison
- Turning Hope into Reality. The journey so far with Casgevy - Paula Shutt
Meetings: 58th
- Stroke in an adult with sickle cell disease - Anupama Krishnamoorthi
- Observational Data on Parvovirus B19 Cases in Patients with Red Cell Disorders in the UK from 2023/24 - Chloe Merrion
- Caring for people with sickle cell disease and thalassaemia syndromes: a competency framework for nursing staff - Gill Coverdale
- Sickle Cell Nutrition: Dietetic Management Considerations in Patient Care Provision - Claudine Matthews
- Caring for people with sickle cell disease and thalassaemia syndromes: a competency framework for nursing staff - Natasha Lewis & Sekayi Tangayi
- Stroke in adults with Sickle Cell Disease - Paul Holmes
- Haemoglobinopathies Clinical Reference Group Update - Zoe Hamilton & Subarna Charkravorty
Meetings: 57th to 53rd
- Amber Alert lessons learnt and future plans – Dr Farrukh Shah
- A Psychologist’s Perspective Supporting Patients Through Transfusion – Ruth Marks
- A case of Hyperhaemolysis – Naeem Desai
- Evidence basis for BSH guidance – Shivan Pancham
- Patient Experience of Blood Transfusion and Cannulation – Rebecca Brookes and Ruth Marks
- Transfusion in low resource settings; Sub Saharan Africa – Dr Shirley Owusu Ofori
- Transfusion near miss – Case Presentation – Dr Shivan Pancham
- Haem Match and genetic determination of blood groups how could these change patient care - Sara Trompeter and Colin Brown
- National Haemoglobinopathy Panel - Baba Inusa
- NHS RHO Sickle Cell Programme Update Intersectionality - Carl Reynolds
- Peer review the new standards and the next review plan - Emma Drasar
- Setting up a multidisciplinary student SCD teaching session - Sandy Hayes and Lesley McCarthy
- Sickle Cell Society - Seyi Afolabi
- UKFHD APPG Response in Leicester A System Wide Approach - Amy Webster
- A Psychologist’s Perspective on Pain - Jeremy Anderson
- An update from the National Sickle Pain Group - Sanne Lugthart
- This is list itemHaemoglobinopathies Specialist Nurse Consultant - Lola Oni
- Managing chronic pain in sickle patients –a pain physician’s perspective - Fauzia Hasni
- Med Tech Funding- What you can apply for - Teresa Baines
- Renal Transplant in Sickle Cell Disease - Jenan Alsanad
- Sickle Chronic Pain case - Saima Afridi
- The role of chronic transfusion for SCD - Claire Sharpe
- Significant Haemoglobinopathy Screening and Diagnosis - Dr Yvonne Daniel
Meetings: 52nd to 48th
- A programme to reduce sickle cell inequality
- Haemoglobinopathies in the age of genomics
- Sickle Cell disease in Pregnancy
- Update of stem cell transplant and the UK haplo trial
- Maintaining paediatric sickle cell services in the COVID-19 pandemic - Eva Tsouana
- A case of DHTR in the setting of COVID -19 - Georgina Santiapillai
- Thinking about and working with vaccine hesitancy - Helen DeMarco
- Novel therapies in Haemoglobinopathies - Jo Howard + Emma Drasar
- COVID experience in the UK - an update - Mark Layton
- A Clinical Nurses Perspective of advising patients on the COVID vaccine Shola Shoyemi + Emma Prescott
- Cast Aside and Forgotten - The impact of COVID 19 and lockdowns on patients' health and well being - Sickle Cell Society
- Disability Services Advocacy Team Leaflet - Theresa Jones
- PIP CAPITA - Theresa Jones
- Transplantation for Adults with Sickle Cell Disease - Victoria Potter
- Management of heart failure in thalassaemia
- Haemoglobinopathies & the Heart 2019
- Pulmonary Hypertension in sickle cell disease - Dr Luke Howard
- Surgical Intervention in PHT - Mr David Jenkins
- Genotype-Phenotype Correlation in Sickle Cell Disease
- Supporting Children with Sickle Cell & Thalassaemia Transition to High School
- Sickle Cell, Work & Employment
Meetings: 47th to 46th
- Introduction to Haemoglobinopathy services in Cardiff
- Improving specialised Haemoglobinopathy services
- Neonatal screening: Should we be informing carrier status?
- Neonatal Screening Should we be informing carrier status - Presentation for the motion
- MDSAS UK Forum Presentation
- SCT Screening NBO system UK Forum
- The experiences of young people with sickle cell disease transitioning from paediatric to adult care
- Contraception in Sickle Cell Disease
- Haemoglobinopathies CRG update
- Prevention of infection in sickle cell disease
- Renal complications in sickle cell disease
- The New Adult Sickle Cell Standards – Implications for Community Care
- The New UK adult sickle standards
- The Social Consequences of Sickle Cell Disorders
- Urological Complications of Sickle Cell Disease
- Workforce Planning: Psychologists in Services for People with Haemoglobin Disorders
Meetings: 45th to 44th
Meetings: 43rd to 41st
- NHR Annual Meeting 2016
- National Haemglobinopathy Registry Manchester UK Forum Meeting
- Exploring-HRQL-and-Health-Behaviours-in-Children-with-SCD
- HbSC disease – is it different and how should we manage it
- Measuring liver iron content in thalassaemia and sickle cell disease 2015
- NHR-adverse-Events
- UKTS and the UK Forum on Haemoglobin Disorders (video)
Meetings: 38th to 23rd
- Insights into the Pathophysiology of Vaso-occlusion using Murine Models of SCD
- Chelation therapy for transfusional iron overload
- Intravital capillaroscopy in sickle
- Survival and complications in thalassemia
- Survival of Thalassemia in 21stC
- Cannabinoids and pain relief
- Clinical Haemoglobinopathies - A commissioning perspective
- Haemoglobinopathy Nursing in the Acute Setting
- Immunisation in Sickle Cell Disorder 2008
- NMUH Conference November 2008
- SCSP New models of care
- The challenge of chronic illness
- Alternative donor transplantation in haemoglobinoapthies
- Bisphosphonates for bone thinning – risks and benefits for patients with thalassaemia
- Hematopoietic Stem Cell Transplant in Adults with Sickle Cell Disease the changing landscape
- Hydroxyurea revisited the asymptomatic patient
- Newborn Outcomes Project 2014
- NHR Update
- Sickle cell & thalassaemia screening programme update 2014
- Sickle cell Transplantation for Adults
Emma trained at St Barts and the Royal London School of Medicine, University of London and qualified in 2001 and is currently working as a Haematology Consultant between UCLH and the Whittington Hospital. She was Clinical Lecturer in Sickle Cell Disease at King’s College Hospital from 2009 to 2013 and during that time was awarded her PhD based on research into markers of severity and predictors of organ dysfunction in sickle cell disease. In 2013 she was awarded the Early Stage Investigator prize from the British Society of Haematology. She is the Haemoglobinopathy Coordinating Centre lead for North Central and West London, East Anglia and the South West and Central England.
John James OBE has 33 years of experience within the NHS including 4 CEO roles. He was Chair of the West London Cancer network (2002-2005) and Chair of the North West London Diabetes Network (2003-2004). 
Dr Subarna Chakravorty is a Paediatric Haematologist with a special interest in non-malignant haematology and stem cell transplant for haemoglobinopathy and non-malignant diseases. She joined King’s College Hospital as consultant in July 2015. Prior to that, Subarna led the Paediatric Haemoglobinopathy service at Imperial College Healthcare NHS Trust and the Imperial Paediatric Red Cell Disorders Network for 5 years, where she was also involved in the bone marrow transplant programme for paediatric haemoglobinopathy. Since 2021, Subarna has been involved in the adult sickle cell bone marrow transplant service at King’s College Hospital.
Dr Rachel Kesse-Adu is a consultant haematologist who qualified in medicine from Imperial College School of Medicine in 2002 and completed her specialist training in haematology at Kings College Hospital in London in 2012.