Appraisal of exagamglogene autotemcel for treating transfusion-dependent beta-thalassaemia [ID4015]
Dear registrant
NICE has taken the decision to postpone the first appraisal committee meeting for this topic. The committee discussion planned for Tuesday 14 December 2023 will therefore not be taking place.
This delay is necessary to allow the additional time that is needed to ensure the committee has all the evidence needed to inform a full and robust committee discussion leading to the most optimum decision-making.
The technology appraisal will be discussed at a meeting of the Highly Specialised Technologies Evaluation Committee on Wednesday 14 February 2024. Please note that this topic will still be considered as a Single Technology Appraisal.
Should you wish to observe, registration will open on the NICE website on Wednesday 24 January 2024. You can follow topic updates on the appraisal webpage.
Kindest regards
Rosalee Mason
Coordinator, Corporate Office
National Institute for Health and Care Excellence
2nd Floor 2 Redman Place Gardens | London E20 1JQ | United Kingdom
Web: http://nice.org.uk Meetings held in public: https://www.nice.org.uk/Get-Involved/Meetings-in-public
Emma trained at St Barts and the Royal London School of Medicine, University of London and qualified in 2001 and is currently working as a Haematology Consultant between UCLH and the Whittington Hospital. She was Clinical Lecturer in Sickle Cell Disease at King’s College Hospital from 2009 to 2013 and during that time was awarded her PhD based on research into markers of severity and predictors of organ dysfunction in sickle cell disease. In 2013 she was awarded the Early Stage Investigator prize from the British Society of Haematology. She is the Haemoglobinopathy Coordinating Centre lead for North Central and West London, East Anglia and the South West and Central England.
John James OBE has 33 years of experience within the NHS including 4 CEO roles. He was Chair of the West London Cancer network (2002-2005) and Chair of the North West London Diabetes Network (2003-2004). 
Dr Subarna Chakravorty is a Paediatric Haematologist with a special interest in non-malignant haematology and stem cell transplant for haemoglobinopathy and non-malignant diseases. She joined King’s College Hospital as consultant in July 2015. Prior to that, Subarna led the Paediatric Haemoglobinopathy service at Imperial College Healthcare NHS Trust and the Imperial Paediatric Red Cell Disorders Network for 5 years, where she was also involved in the bone marrow transplant programme for paediatric haemoglobinopathy. Since 2021, Subarna has been involved in the adult sickle cell bone marrow transplant service at King’s College Hospital.
Dr Rachel Kesse-Adu is a consultant haematologist who qualified in medicine from Imperial College School of Medicine in 2002 and completed her specialist training in haematology at Kings College Hospital in London in 2012.