Standards & Peer Reviews
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Academic Meetings
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Patient Resources
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Awards & Accolades
More detailsBlack Lives Matter
The National Haemoglobinopathy Panel, Haemoglobinopathy Coordinating Centres along with our partners the UK Forum on Haemoglobinopathies, Sickle Cell Society, UK Thalassaemia Society, we stand in solidarity with Black Lives Matter. We recognise that our commitment must also reflect itself in our actions, attitudes and how we advocate for our patient population and staff.
Networking
Whether you are a patient, student, scientist, nurse, psychologist, or doctor networking is one of the most essential processes that help bring the community together. It is not just about connecting with as many people possible but more about meeting the ones who can endorse your skillsets, show you opportunities, educate, support you and direct you to other, well-connected people.
Why not become a member and begin building your own community? Now is the time.
Health Equity
Across the nation, gaps in health are large, persistent and increasing—many of them caused by barriers set up at all levels of our society. After all, it’s hard to be healthy without access to good jobs and schools and, safe, affordable homes. Health equity means increasing opportunities for everyone to live the healthiest life possible, no matter who we are, where we live, or how much money we make.
Inclusivity
Social inclusion by definition is about making all groups of people feel included and valued within their society or community.
Where individuals or groups of individuals are excluded, or feel on the margins of society there is often a direct impact on their health. Certain illness or disability itself can also cause people to be excluded.
Diversity
Physicians, scientists and other medical experts dedicate a portion of their clinical time to this site, we are in the unique position to give you access to the knowledge and experience of Medical Physicians, scientists and other medical experts dedicate a portion of their clinical time to this site.
Members feedback on meeting presentations
Nice to know there is an ongoing work to improve the platform and good engagement from MDSAS
It was good to know how well the NHR are doing
It is wonderful to learn about the developments of this important facility
Excellent speaker who made a rather dry subject very interesting
Excellent and fantastic session, exceptionally powerful.
Constant reminders about the underlying severity of transfusion-dependent thalassaemia are probably required to offset complacency and resulting tragedy.
All talks were superb, but I think this was the best today.
Fantastic session and exceptionally powerful.
A difficult topic to listen to as we are all too aware of the difficulties we face every day in our speciality, but gave a great deal of hope that we can bring around change together.
Excellent presentation, lots of lessons to be learnt and actions to be implemented.
Really glad that race-related inequalities are still at the forefront of our discussions
Very good and feel a session on this should be a regular session at each meeting to update the group
Really useful and informative presentations
We collaborate with the following organisations.
Emma trained at St Barts and the Royal London School of Medicine, University of London and qualified in 2001 and is currently working as a Haematology Consultant between UCLH and the Whittington Hospital. She was Clinical Lecturer in Sickle Cell Disease at King’s College Hospital from 2009 to 2013 and during that time was awarded her PhD based on research into markers of severity and predictors of organ dysfunction in sickle cell disease. In 2013 she was awarded the Early Stage Investigator prize from the British Society of Haematology. She is the Haemoglobinopathy Coordinating Centre lead for North Central and West London, East Anglia and the South West and Central England.
John James OBE has 33 years of experience within the NHS including 4 CEO roles. He was Chair of the West London Cancer network (2002-2005) and Chair of the North West London Diabetes Network (2003-2004). 
Dr Subarna Chakravorty is a Paediatric Haematologist with a special interest in non-malignant haematology and stem cell transplant for haemoglobinopathy and non-malignant diseases. She joined King’s College Hospital as consultant in July 2015. Prior to that, Subarna led the Paediatric Haemoglobinopathy service at Imperial College Healthcare NHS Trust and the Imperial Paediatric Red Cell Disorders Network for 5 years, where she was also involved in the bone marrow transplant programme for paediatric haemoglobinopathy. Since 2021, Subarna has been involved in the adult sickle cell bone marrow transplant service at King’s College Hospital.
Dr Rachel Kesse-Adu is a consultant haematologist who qualified in medicine from Imperial College School of Medicine in 2002 and completed her specialist training in haematology at Kings College Hospital in London in 2012.