Previous Meeting Presentations               Back to publications

47th Meeting

2018-11-13 Introduction to Haemoglobinopathy services in Cardiff
20181106 Improving specialised Haemoglobinopathy services
20181113 – Cardiff: Neonatal screening: Should we be informing carrier status?
MDSAS UK Forum PresentationThe New UK adult sickle standards
SCT Screening NBO system UK FORUM 13.11
UK Forum Neonatal Screening 13.11
UKFHD presentation 13 November 2018 Renedo et alThe New Adult Sickle Cell Standards-Implications for Community Care

46th Meeting

45th Meeting

Palliative Care SickleWest Midlands Haemoglobinopathy Networks
Improving early access to antenatal screening
Service review – The case for change

44th Meeting

SCT Newborn Outcomes Register

42nd Meeting

UKTS and the UK Forum on Haemoglobin Disorders (video)
National Haemglobinopathy Registry – Manchester Meeting  – zipped file if needed
National Haemglobinopathy Registry – Annual Meeting 2016zipped file if needed

41st Meeting

HRQL and Health  Behaviours in Children with SCD – C. Constantinou
HbSC disease – is it different and how should we manage it? – D.Rees
Measuring liver iron content in thalassaemia & SCD – M. Garbowski
NHR adverse Events – A. Cope

38th Meeting

Bisphosphonates for bone thinning – risks and benefits
Sickle cell & thalassaemia screening programme update
Hematopoietic Stem Cell Transplant in Adults with SCD
Hydroxyurea revisited: the asymptomatic patient
Newborn Outcomes Project UK Haemoglobinopathy Forum 2014
NHR Update
Sickle cell Transplantation for Adults
Alternative donor transplantation in haemoglobinoapthies

27th Meeting

2008 Haemoglobinopathy Feedback
Clinical Haemoglobinopathies – A commissioning perspective – S. Mather
Haemoglobinopathy Nursing in the Acute Setting
Immunisation in Sickle Cell Disorder 2008
NMUH Conference November 2008
SCSP New models of care
The challenge of chronic illness

25th Meeting

Cannabinoids and pain relief – A. Holdcroft

23rd Meeting

Chelation therapy for transfusional iron overload – K. Ryan
Intravital capillaroscopy in sickle – M. Layton
SCD Abstract – C. Hillery
Survival and complications in thalassemia – C. Borgna-Pignatti
Survival of Thalassemia in 21stC – C. Borgna-Pignatti

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