Clinical Guidelines & Standards:    

Workforce Planning: Psychologists in Services for People with Haemoglobin Disorders
Clinical Care of Children and Adults with Thalassaemia in the UK
Transcranial Doppler Scanning for Children with SCD Standards and Guidance 2nd Edition 2016
Haemoglobinopathy workforce survey 27.8.2015
Services for People with Haemoglobin Disorders – Peer Review Programme 2014-16 Overview Report
Standards for the Clinical Care of Children and Adults with Thalassaemia in the UK.
Sickle Cell Standards

 

51st Meeting Presentations

Maintaining paediatric sickle cell services in the COVID-19 pandemic – Eva Tsouana
A case of DHTR in the setting of COVID-19 – Georgina Santiapillai
Thinking about and working with vaccine hesitancy – Helen DeMarco
Novel therapies in Haemoglobinopathies – Jo Howard + Emma Drasar
COVID experience in the UK – an update – Mark Layton
A Clinical Nurses Perspective of advising patients on the COVID vaccine – Shola Shoyemi + Emma Prescott
Cast Aside and Forgotten – The impact of COVID 19 and lockdowns on patients’ health and well being – Sickle Cell Society
Disability Services Advocacy Team Leaflet – Theresa Jones
PIP CAPITA – Theresa Jones
Relationship Manager IAS PIP awareness presentation – Theresa Jones
Transplantation for Adults with Sickle Cell Disease Victoria Potter

 

49th Meeting Presentations

Engendering Sickle Cell In Sierra Leone:Why North-South Partnerships Matter
Genotype-Phenotype Correlation in Sickle Cell Disease
Supporting Children with Sickle Cell & Thalassaemia Transition to High School
Sickle Cell, Work & Employment

 

48th Meeting Presentations

Haemoglobinopathies & the Heart
Pulmonary Hypertension in sickle cell disease – Dr Luke Howard
Surgical Intervention in PHT – Mr David Jenkins
Management of heart failure in thalassaemia – Dr Resham Baruah