Previous Meeting Presentations

 47th Meeting

2018-11-13 Introduction to Haemoglobinopathy services in Cardiff
20181106 Improving specialised Haemoglobinopathy services
20181113 – Neonatal screening: Should we be informing carrier status?
MDSAS UK Forum Presentation The New UK adult sickle standards
SCT Screening NBO system UK FORUM 13.11
UK Forum Neonatal Screening 13.11
UKFHD presentation 13 November 2018 Renedo et al The New Adult Sickle Cell Standards-Implications for Community Care

 

46th Meeting

Contraception in Sickle Cell Disease 2018
Prevention of infection in sickle cell disease – a clinician’s approach
Renal complications in sickle cell disease
The New UK adult sickle standards
The Social Consequences of SCD
Urological Complications of Sickle Cell Disease
The New Adult Sickle Cell Standards-Implications for Community Care
Haemoglobinopathies CRG update

 

45th Meeting

Palliative Care Sickle Cell
West Midlands Haemoglobinopathy Networks
Improving early access to antenatal screening
Service review – The case for change

 

44th Meeting

SCT Newborn Outcomes Register

 

42nd Meeting

UKTS and the UK Forum on Haemoglobin Disorders (video)
National Haemglobinopathy Registry – Manchester Meeting
National Haemglobinopathy Registry – Annual Meeting 2016

 

41st Meeting

HRQL and Health  Behaviours in Children with SCD – C. Constantinou
HbSC disease – is it different and how should we manage it? – D.Rees
Measuring liver iron content in thalassaemia & SCD – M. Garbowski
NHR adverse Events – A. Cope

 

38th Meeting

Bisphosphonates for bone thinning – risks and benefits
Sickle cell & thalassaemia screening programme update
Hematopoietic Stem Cell Transplant in Adults with SCD
Hydroxyurea revisited: the asymptomatic patient
Newborn Outcomes Project UK Haemoglobinopathy Forum 2014
NHR Update
Sickle cell Transplantation for Adults
Alternative donor transplantation in haemoglobinoapthies

 

27th Meeting

2008 Haemoglobinopathy Feedback
Clinical Haemoglobinopathies – A commissioning perspective – S. Mather
Haemoglobinopathy Nursing in the Acute Setting
Immunisation in Sickle Cell Disorder 2008
NMUH Conference November 2008
SCSP New models of care
The challenge of chronic illness

 

25th Meeting

Cannabinoids and pain relief – A. Holdcroft

 

23rd Meeting

Chelation therapy for transfusional iron overload – K. Ryan
Intravital capillaroscopy in sickle – M. Layton
SCD Abstract – C. Hillery
Survival and complications in thalassaemia – C. Borgna-Pignatti
Survival of Thalaessemia in 21stC – C. Borgna-Pignatti