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Quality Standards

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Academic Meetings

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Educational Resources

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Patient & Carer Resources

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Black Lives Matter

Black Lives Matter

The National Haemoglobinopathy Panel, Haemoglobinopathy Coordinating Centres along with our partners the UK Forum on Haemoglobinopathies, Sickle Cell Society, UK Thalassaemia Society, we stand in solidarity with Black Lives Matter. We recognise that our commitment must also reflect itself in our actions, attitudes and how we advocate for our patient population and staff.

Networking

Networking

Whether you are a patient, student, scientist, nurse, psychologist, or doctor networking is one of the most essential processes that help bring the community together.  It is not just about connecting with as many people possible but more about meeting the ones who can endorse your skillsets, show you opportunities, educate, support you and direct you to other, well-connected people. 

Why not become a member and begin building your own community? Now is the time.

 

Health Equity

Health Equity

Across the nation, gaps in health are large, persistent and increasing—many of them caused by barriers set up at all levels of our society. After all, it’s hard to be healthy without access to good jobs and schools and, safe, affordable homes. Health equity means increasing opportunities for everyone to live the healthiest life possible, no matter who we are, where we live, or how much money we make.

Inclusivity

Inclusivity

Social inclusion by definition is about making all groups of people feel included and valued within their society or community.

Where individuals or groups of individuals are excluded, or feel on the margins of society there is often a direct impact on their health. Certain illness or disability itself can also cause people to be excluded.

Diversity

Diversity

Physicians, scientists and other medical experts dedicate a portion of their clinical time to this site, we are in the unique position to give you access to the knowledge and experience of Medical Physicians, scientists and other medical experts dedicate a portion of their clinical time to this site.

Members feedback on meeting presentations

Dr Farrukh Shah
Presentation: The upgraded and revamped NHR

Nice to know there is an ongoing work to improve the platform and good engagement from MDSAS
It was good to know how well the NHR are doing
It is wonderful to learn about the developments of this important facility
Excellent speaker who made a rather dry subject very interesting

Roanna Maharaj
Presentation: Lessons learnt from patients

Excellent and fantastic session, exceptionally powerful.
Constant reminders about the underlying severity of transfusion-dependent thalassaemia are probably required to offset complacency and resulting tragedy.
All talks were superb, but I think this was the best today.

John James
Presentation: Sickle Cell Society

Fantastic session and exceptionally powerful.
A difficult topic to listen to as we are all too aware of the difficulties we face every day in our speciality, but gave a great deal of hope that we can bring around change together.
Excellent presentation, lots of lessons to be learnt and actions to be implemented.

Dr Raselle Miller, Dr Noemi Roy, Dr Helen DeMarco, Sola Njoku
Presentation: Continuing the conversations around race-related health inequalities

Really glad that race-related inequalities are still at the forefront of our discussions
Very good and feel a session on this should be a regular session at each meeting to update the group
Really useful and informative presentations

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